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Healthcare
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From Fragmented Systems to Unified Care: Realizing the Power of the Single Patient Record

By
Distilled Post Editorial Team

At ten past six on a Thursday evening, a district nurse is trying to establish whether an elderly patient, discharged from hospital that afternoon, is still taking an anticoagulant. The discharge summary has arrived as an attachment. The GP record shows one dose, the hospital system shows another, and the patient's daughter is certain a further change was made on the ward. The nurse makes two phone calls, finds the answer and writes it into a system the next clinician may or may not be able to see. Nothing about this is unusual. It is the routine cost of an NHS whose records were built organisation by organisation.

The government's proposed Single Patient Record is meant to remove that cost. Ministers place it at the centre of the Health Bill, which has passed its Second Reading, and promise that by 2028 patients will see their histories, appointments, test results and care plans through the NHS App. The ambition is credible and long overdue. Few clinicians would argue against a record that follows the patient. The harder question is whether the profession will believe in it enough to use it well. The National Data Guardian, Dr Nicola Byrne, is testing exactly that with an eleven-question survey of health and care staff, which closes at 5pm on Friday 9 October.

The scale and timing deserve scrutiny. A survey open for a matter of weeks, answered by staff between shifts, will inform an advisory report to ministers this autumn while the legislation moves forward. Consultation that struggles to reach exhausted teams is a thin foundation for a reform that relies on those same teams to enter accurate data. Workforce strain shapes data quality directly. A unified record also magnifies error. A wrong allergy entry once confined to a single practice would travel with the patient to every setting. The survey asks who is accountable for accuracy and for resolving conflicting entries. That question has no settled answer yet, and in the absence of one it will fall on clinical desks that are already crowded.

The confidentiality proposal carries the greater political risk. Professionals using the record would be exempted from the usual legal duty of confidentiality so that information can move freely. The patient safety case is real, since reviews of avoidable harm have repeatedly found that information failed to reach the person who needed it. Yet clinicians regard confidentiality as the basis of their relationship with patients, and the public may not read its removal as administrative tidying. The earlier national care data programme and the 2021 plan to extract GP records for planning and research both stalled after public alarm over who would see the data and how it would be used. Officials should not need reminding. Technology was rarely the obstacle in either case. Patients felt that decisions had been taken about them without their knowledge.

Secondary use sharpens the problem. The government wants health data to serve research and the life sciences sector as well as direct care, and the survey asks clinicians whether trust survives when records are used beyond the consulting room. If a nurse cannot explain to a patient who may see their record and why, opt-outs will rise and the research value of the dataset will fall. Industry has a direct interest in seeing the direct care governance settled first, because its own access depends on it.

The practical implications are specific. Trust leaders need to protect clinical time for training and for local ownership of data quality before any go-live. Policymakers should consider whether the confidentiality exemption needs narrower safeguards, independent review or a sunset provision, and should publish the Data Guardian's findings before amendments are finalised. The Parliamentary and Health Service Ombudsman has suggested end-of-life care as an early use case. It is sensible advice. The stakes are high, the benefit is clear and the group of users is bounded, which allows the record to prove itself before it scales.

A record that follows the patient is only as good as the willingness of staff to write in it and of the public to let it travel. The nurse on the evening round will decide, one entry at a time, whether the Single Patient Record becomes the first thing she checks or another system she works around. The government has a few weeks of consultation and a few months of parliamentary time to give her a reason to choose the former.

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